Thursday, October 31, 2013

20 days off, October 30th, 2013

Yesterday was the Chili Cook off and Trunk or Treat. Let me tell you there was anxiety to be had all around for me. Oh my was it hard. First we have to deal with all the food that is around that he cannot touch or eat. Corn bread, cupcakes, chili, crackers. (I just noticed these are all "c" words. HA) We brought his food. But after sitting in the gym for about 30 mins his face and hands became red and itchy. You can see this in the pictures below.

But I must say that my ward is AMAZING!!! They may not understand Bubba's allergies but they ask what they can do to help. He cannot have any type of candy what so ever (unless maybe a homemade kind that doesn't have his allergens). I provide some people with a toy so that they could hand that to him instead of candy. It worked out great. There were also a few people that provided their own toy for him to have. How amazing are they!? He had fun but man was it stressful. Maybe next year we will just go to the trunk or treat and not the chili cook off.

I think his skin looks worse yesterday then it has since we started all of this. I assume there will be worse days then this though. My poor poor baby! 














His loot!

19 days off, October 30th, 2013

After these pictures were taken there was a HORRIBLE night sleep that followed. Lots of itching and not sleeping. 














18 days off, October 28th, 2013

Where the heck did this all come from? This just shows it can change in an instant. Itching all day and night. Needing to wear socks on his hands and make sure that his body is covered. I have tried baths but every time he gets in all he does it ITCH ITCH ITCH. I just don't know how it can be clear one day and then BAM. The only thing that helps a little bit is Vaseline and we have used Wedela Diaper Care cream on his body. 

The only thing that we have changed in his routine is taking out the topical steroid. We have not given him his allergens, he hasn't gone to a different house that he usually doesn't go to. Nothing. So obviously the only thing it can be is the stupid topical steroids. DANG IT. 












17 days off- October 27th, 2013

Still looking pretty good. Especially the hands. 








16 days off- October 26th, 2013

Looking GREAT! I thought it was going away!









15 days off of steroids, October 25th, 2013

Look at how clear the skin is in these pictures????? So much hope that it will go away at this point.

But I was disappointed when I went into his room and found him half naked with his jammies and diaper off because he had scratched himself crazy!




 The red line is gone!